Monday, May 31, 2010

Alzheimer's Blogging

Good Morning and Happy Memorial Day.
So far it has been an uneventful day on my ambulance. But it is early and the picnics haven't started yet.

Have you looked at Alzheimer's Weekly yet this week? They have some interesting topics.
THE ALZHEIMER'S GENE AND WHAT DIFFERENCE DOES IT MAKE
FAMILY HISTORY AND THE ODDS OF ALZHEIMER'S
GENETIC TESTS WITHOUT WORRY

www.alzheimersweekly.com

I hope you all are having a good day. Listen to the elderly today. Especially the ones who fought in the war for our country and the women who stayed at home and helped out. The elderly have a voice and so much to say. They may talk slow sometimes, but if you listen, really listen, you will learn more about them and who they really are. We all are going to get old someday. Who we are now will not be later in life. People will forget what we had done. And when someone looks at you, while old and they think, yea he is just an old man or old women, you will be thinking, once I wasn't and I had a life and I made a difference. So listen to what they did, and help their memory live on.

Sincerely,
Marie Fostino
Alzheimer's A Caretakers Journal
Seaboard Press An Imprint of James A Rock Pub, Co.
www.mariefostino.com
www.mariefostino.blogspot.com

Saturday, May 29, 2010

Alzheimer's Blogging:

Good holiday weekend. It is Memorial Day weekend. Yep, I am stuck on an ambulance this weekend and I am working today and on Monday. But that won't stop me from remembering the people who died for us so that we can live the way we do in America today.

My father in law fought in WW11. My daughter was in Iraq. I appreciate them and all the others who have given time for our freedom. Let's not forget to pray and thank God for what we have and for the men and women who died giving us our freedom.

Sincerely,
Marie Fostino
Alzheimer's A Caretakers Journal
Seaboard Press An Imprint of James A Rock Pub., Co.
www.mariefostino.com
www.mariefostino.blogspot.com

Thursday, May 27, 2010

Alzheimer's Blogging

Keeping a journal during this terrible disease was a way to see how much my father in law changed. Sometimes the days would run into each other and I needed to write to make sure I caught all the changes. Here is another entry in my Journal.

May 20, 2003

Dad got up a couple of times last night and when I put him back to bed, even thought he's wearing a diaper now, I'll find both him and the bed wet. It's good thing I have a plastic cover on the mattress. Now he's having trouble with the bathroom during the day. I'm not sure if he forgets or if he's having trouble getting his pants undone. I'm having real trouble finding elastic waist pants with no zipper. I don't want sweat pants or nylon pants. I always see people in nursing homes wearing these, but Dad never wore pants like that.

I still think that maintaining a regular schedule and making him do simple things keeps him from roaming too much, both physically and mentally. Maybe I'm just fooling myself, but I hope a routine will keep him with us a little longer, mentally. I think he deserves whatever I can do to maintain a quality of life.

I'm afraid I'll have to start using the diapers in the daytime as well as at night. He told Jimmy he doesn't want to think for himself and wants people to think for him. That is not the Joe I know.

I am sure many of you are in this place right now. Just remember you are not alone. I felt alone because family would not come and visit me. Thank heavens for my husband and my kids and my girlfriend Lynn. If there is anything I can write about that can help you please let me know. I would like to help anyway I can.

Sincerely,
Marie Fostino
Alzheimer's A Caretakers Journal
Seaboard Press An Imprint Of James A Rock Pub., Co.
www.mariefostino.com
www.mariefostino.blogspot.com

Tuesday, May 25, 2010

ALZHEIMER'S BLOGGING:

I thought I would write from my journal tonight. It was written May 22, 2003.

Today is Thursday and it was a hard day. Dad is now more confused than ever. He's rushing but he's unable to concentrate on anything at all. When I put him in the bathtub this morning, he snuck out. I had to put him back in and wash him. He was mad that he had to shave and brush his teeth, something we do every morning. He was very disturbed by this. He did not want to put on the elastic waist pants and forgot how to put his shirt on.

He asked me what was on his plate for breakfast. He complained that I wasn't making it fast enough. He wants me to cut up his waffles now--this is another turning point.

I just wanted to share with you a day of my experience. I know how you feel. I know how hard and frustrating it is to take care of a loved one with Alzheimer's. If you have any questions, and if I can give you any advice to help you, I would be so happy.

Sincerely,
Marie Fostino
Alzheimer's A Caretakers Journal
Seaboard Press An Imprint Of James A Rock Pub., Co.
www.mariefostino.com
www.mariefostino.blogspot.com

Sunday, May 23, 2010

Alzheimer's Blogging:

Have you checked out Alzheimer's Weekly www.alzheimersweekly.com this week. For years we have treated coffee as nothing more than a pleasant pick me up. However emerging evidence suggests that the caffeine might have much wider ranging effects, says Dr. Susanne Sorenson of the Alzheimer's Society.

Please check out CAFFEINE COULD SLOW DEMENTIA SUCH AS ALZHEIMER'S.

Also there is another article called: CAN COFFEE PREVENT ALZHEIMER'S.
The new findings provide evidence that caffeine could be a viable treatment for established Alzheimer's Disease, and not simply a protective strategy, said lead author and neuroscientist Gary Arendash, PhD.

Check it out.

Sincerely,
Marie Fostino
Alzheimer's A Caretakers Journal
Seaboard Press An Imprint Of James A Rock Pub., Co.
www.mariefostino.com
www.mariefostino.blogspot.com

Saturday, May 22, 2010

ALZHEIMER'S BLOGGING

WHAT HAPPENS WHEN YOUR LOVED ONE WITH ALZHEIMER'S DECIDES NOT TO EAT?
This is a very common problem. The real question is, how aggressive should we be in the treating our loved one in the late stage of Alzheimer's. Do we authorize medical treatment for our loved one as their minds go away, yet their bodies live on. Alzheimer's patients cannot speak for themselves about their care. Some family members argue that intense treatment in the late stages of Alzheimer's is inappropriate, even cruel, and the costs are excessively high. For some family members the cost are not an issue, so when their kidneys fail, they get dialysis, and infections are treated with IV antibiotics. We want guidance and want to be told what is appropriate. There is unspoken concern that if treatment is stopped, we will be judged by family, friends, and church. We need support groups and counseling about the loss of the ability to eat and drink, and to know that now the loved one has entered into the terminal phase of the illness. We should let our loved ones die peacefully. The Alzheimer's Association guidelines on patients in the final stages of the disease say that it is ethically permissible to with hold feeding tubes and that spoon feeding should be continued if needed for comfort.

Sincerely,
Marie Fostino
Alzheimer's A Caretakers Journal
Seaboard Press An Imprint Of James A Rock Pub., Co.
www.mariefostino.com
www.mariefostino.blogspot.com

Thursday, May 20, 2010

ALZHEIMER'S BLOGGING

Today I met an 87 yr old female who was tired of being in nursing homes and wanted to be back home. Her main complaint was that the staff was treating her like she had dementia or senile. She lived at home alone until she fell and broke her right arm. Due to a disease that leaves her with soft, bent bones she has to be very careful. When I started to talk to her and ask her questions I did notice that she could not hear me very well. So I had to talk slower and louder. I told her how I was putting a blood pressure cuff on her to take her blood pressure and she said, "I know what you do with that, you think I'm stupid or something?" I apologized and listened to her story. She said that since she has been in the nursing home to heal, the staff doesn't talk to her very nice and treat her like she is dumb. "Just cause I can't hear all the time or even have trouble seeing doesn't mean I am stupid," she said.

I am writing this for you to have patience with your loved one or someone you have met and that just cause they can't hear you doesn't mean they have dementia.

Sincerely,
Marie Fostino
Alzheimer's A Caretakers Journal
Seaboard Press An Imprint Of James A Rock Pub., Co.
www.mariefostino.com
www.mariefostino.blogspot.com

Wednesday, May 19, 2010

ALZHEIMER'S BLOGGING:

One of my favorite memories is the first time my husband and I decided to go camping. We were young and had only a couple of children. My father in law, Joe, came with us. Joe is what you would call a handy man. He was so smart, and had so much patience. So we went to Yogi Bears Park in Illinois. We brought three tents. Sure enough my husband was having trouble putting them together. Thank heavens for the wisdom and patience of Joe, our tents were put up for the night. Jimmy thought he had it all for cooking, but had trouble with the propane burner. So thanks to Joe we also got to eat. It was fun fishing, swimming and the camp fire afterwards. Joe was also great to have around when we took it all down. I kept the kids busy, and the two men packed up.

My reason for this is even though my father in law had to get that terrible disease called Alzheimer's I have wonderful memories of the man he was and that is what helped me get through the time to till his death. It was because of the wonderful person he was that made me want to take care of him till his death. That is what made me want to try to give back to him to him what he gave to us.

Sincerely,
Marie Fostino
Alzheimer's A Caretakers Journal
Seaboard Press An Imprint of James A Rock Pub., Co.
www.mariefostino.com
www.mariefostino.blogspot.com

Tuesday, May 18, 2010

Alzheimer's Blogging:

I keep reading literature about Alzheimer's even though my father in law has passed away, I am a baby boomer and who knows if this disease can creep up on me or my husband. Alzheimer's Weekly has some good articles in it this week. One is called 'Close Relationship with Caregiver Slows Alzheimer's. This research monitored 167 patients with Alzheimer's for three years. It was found the higher level of closeness with to one caregiver showed a slower decline in both cognitive & functional domains, especially ones with spouse caregivers.

Another article called 'Caregiving Can Prolong Your Live'. Elderly people who spent at least 14 hrs a week taking care of a disabled spouse live longer than others. Taking care of their spouse meant eating, dressing, bathing, preparing meals for a starter. The study showed beneficial health effects of caregiving, helping and altruism. Stephanie Brown is the researcher and she states she doesn't know exactly how caregiving motivation might influence health , but maybe by helping another person, especially someone you love, releases some of the harmful stress effects of seeing that person suffer.

One more article called 'Nursing Homes Accelerate Cognitive Decline in Alzheimer's Patients'.
This article states that moving your loved one to a nursing home speeds up the decline of the disease. It suggests that the transition from a community to a nursing home is particularly difficult for people with Alzheimer's.

Pleases read Alzheimer's Weekly for these and other great topics. http://www.alzheimersweekly.com/

Sincerely,
Marie Fostino
Alzheimer's A Caretakers Journal
Seaboard Press An Imprint of James A Rock Pub., Co.
http://www.mariefostino.com/
http://www.mariefostino.blogspot.com/

Sunday, May 16, 2010

Alzheimer's Blogging:

Can I prevent this disease? I use to make my father in law do board puzzles, and play cards with me. Yet his mind kept slipping farther and farther away. In time he could not even hold the cards, so we put them on the table and I would have to figure out how to play without cheating.

Fish oil, exercising the body like walking or playing golf, eating correctly, and exercising the mind like reading or cross word puzzles will help to maybe delay but there is no proof that it can stop this terrible disease.

Exercise and lots of water help keep the blood, oxygen and nutrients moving to where ever it is needed including the brain. A healthy lifestyle is a prevention of so many kinds of diseases. Who knows, maybe in time the scientists can tell us what to do to prevent this terrible disease to happen to us.

Sincerely,
Marie Fostino
Alzheimer's A Caretakers Journal
Seaboard Press An Imprint of James A Rock Pub., Co.
www.mariefostino.com
www.mariefostino.blogspot.com

Saturday, May 15, 2010

Alzheimer's Blogging:

MEDICARE: Our parents depend on this and someday we will also. I work on an ambulance and the biggest question I get when I transport someone is, will Medicare pay for this ride.

I went on Caring.com and someone asked if Medicare would pay for their parent to go to dialysis and back to nursing home?

Joseph L. Matthews, a Caring.com senior editor, an attorney and an author of Long Term Care: How to Plan & Pay For It. writes: www.caring.com
Not Medicare part A, which covers in hospital or nursing faculty care. There is a small chance Medicare part B, which cover out patient care and might cover wheel chair van transportation.

On Medicare.gov: Medicare does not pay for any transportation services except ambulance services, but Medicare may pay for transportion services to get you to an appointment if you are eligible. www.medicare.gov

On Center of Care Advocacy Corporation; Medicare part B benefit includes coverage of ambulance transportation services provided on either emergency or non emergency basis. However, as with all services under medicare, the beneficiary must meet very specific criteria in order for Medicare to make payment. www.medicareadvocacy.org

In non-emergency situations ambulance transportion is covered only if there is an order by a physician certifying that transportation by other means would be contradicted or that the beneficiary is bed confined. Bed confinement for Medicare means: not able to get out of bed in their own, unable to ambulate, and unable to sit in a wheel chair.

Please check your Medicare for your loved one. You may be getting bills that they will not pay for. You will have to let the nursing home, hospital, or where ever your loved one is to please don't just call an ambulance for convenience. The bill won't be worth it. There are medi vans out there and wheel chair vans out there and stretcher vans that can help transport your loved one with out that terrible bill.

Sincerely,
Marie Fostino
Alzheimer's A Caretakers Journal
Seaboard Press An Imprint Of James A Rock Pub., Co.
www.mariefostino.com
www.mariefostino.blogspot.com

Thursday, May 13, 2010

ALZHEIMER'S BLOGGING:

When we first moved in with my father in law he sometimes forgot our names. He would lose his razor and forget where he put it. In time he forgot how to turn on a light switch, or make coffee, something he made most of his adult life. We were not real familiar with Alzheimer's but we got a fast lesson on this undesirable disease.

Alzheimer's Disease affects nearly 5 million people in the US. This disease gradually destroys a persons memory and ability to learn. There is no cure for Alzheimer's and no way to predict how fast someone will progress through the stages of this disease.

Early diagnosis and treatment can slow the progression of this terrible disease. If you or someone you know is experiencing these symptoms please see a doctor and get on some medicine to try and help slow the process down.

Sincerely,
Marie Fostino
Alzheimer's A Caretakers Journal
Seaboard Press An Imprint Of James A Rock Pub., Co.
www.mariefostino.com
www.mariefostino.blogspot.com

Wednesday, May 12, 2010

Alzheimer's Blogging:

Age is the biggest risk for Alzheimer's and currently there is no cure. We have drugs that help the breakdown of acetylcholine a brain chemical believed important for memory and thinking, but no cure. With more baby boomers getting older we have more people with this Alzheimer's Disease. The burden of care for all of these people are getting greater. In dealing with these family members we need to keep more positive reinforcement than negative. A pleasant visit or phone call can leave a positive influence on the patients happiness. On the other hand neglecting your loved one will leave him sad and frustrated. There are many resources out there to help you. Look for a good support group to help with ideas and to vent. Look for respite care because if you don't take care of yourself you won't be able to take care of your loved one. And when your loved one gets into the last stage of Alzheimer's look up Hospice Care.

Sincerely,
Marie Fostino
Alzheimer's A Caretakers Journal
Seaboard Press An Imprint Of James A Rock Pub., Co.
www.mariefostino.com
www.mariefostino.blogspot.com

Tuesday, May 11, 2010

ALZHEIMER'S BLOGGING

Today I had a Spanish speaking patient in her 70's. Her daughter only spoke Spanish also. The patient was lethargic, and throwing up for 24 hours. We took her vitals and her blood pressure was high and her blood sugar was high. Thank heavens my partner knew Spanish and he was able to talk for me. It would be of great interest if you kept a sheet of paper at home with all the important information on it for ambulance people. Information like name, address, phone number, birthday, social security number, insurance, medical history, allergies, and current medications. Especially if your English is not very good or in case it was such an emergency that we would have to load and go with the patient. All this information is vital for good patient care.

Sincerely,
Marie Fostino
Alzheimer's A Caretakers Journal
Seaboard Press An Imprint Of James A Rock Pub., Co.
www.mariefostino.com
www.mariefostino.blogspot.com

Sunday, May 9, 2010

ALZHEIMER'S BLOGGING

HAPPY MOTHERS DAY

This is a wonderful holiday. Mothers deal with so many emotions. We are the heart of the family, the rock that holds the family afloat, and the ribbon that keeps the family together. We are soft, kind, feels sorry, feels hurt, heals little wounds, drys tears, keep peace, and the authoritative person of the family. Yes, the man is the head of the family but the wife is his supporter.

My heart is out there for all you mothers who are dealing with a husband with Alzheimer's. You will be rewarded in heaven. You have your memories to keep you going and your kids for your support. Thank heavens for kids.

I hope you all had a GREAT MOTHERS DAY.

Sincerely,
Marie Fostino
Alzheimer's A Caretakers Journal
Seaboard Press An Imprint Of James A Rock Pub., Co.
www.mariefostino.com
www.mariefostino.blogspot.com

Friday, May 7, 2010

ALZHEIMER'S BLOGGING

This morning was beautiful with the sun shining bright, and in the 70's. My husband decided to take me on a hike at the White Tanks again. This is unusual for my husband who doesn't like to do any kind of physical exersice. I was very pleased and took him up on it. He did a little bit better this time, not stopping so much to rest. He did fall one time, since he wasn't watching where he was walking and tripped on a rock that was in the middle of the trail.

On the way back, we passed a group of women. They looked like they were any where from 40 to 30 yrs old. But in the middle of them was a women who looked much older. She was skinny with bruising on her legs. She had a beautiful smile and I told her how beautiful she was and asked her how old she was. She smiled and told me she was 85 yrs old. I told her she was in inspiration and I hope I can do the same as her when I am her age. I only have 30 yrs to go. I pray that I can do this hike at 85 yrs old.

Sincerely,
Marie Fostino
Alzheimer's A Caretakers Journal
Seaboard Press An Imprint Of James A Rock Pub., Co.
www.mariefostino.com
www.mariefostino.blogspot.com

Tuesday, May 4, 2010

ALZHEIMER'S BLOGGING: ALZHEIMERSBLOG:

This week in Alzheimer's Weekly they have an Alzheimer's Prevention Chart.
It is a very interesting article to read. The biggest thing I can see in reducing the risk is Fish Rich in Omega 3. Activity is rated a modest for reducing the risk. Things like: physical activity - gardening - painting - religious services - club membership.

There is also a big list for increasing the risk. The biggest things are: high blood pressure - depression - depressive symptoms - loss of spouse - tobacco use.

Please look up www.alzheimersweekly.com The top story is Understanding The Alzheimer's Prevention Report.

Don't forget to look at Dear Nurse Dina, Can surgery aggravate dementia. I know from personal experience that it can make the dementia worse. At least it did when my father in law needed to have his hip replaced. His Alzheimer's got worse right away. Check out her column. She does say that many people report a worsening of symptoms after anesthesia. She also has an informative discussion with a link to read about it.

Sincerely,
Marie Fostino
Alzheimer's A Caretakers Journal
Seaboard Press An Imprint of James A Rock Pub., Co.
www.mariefostino.com
www.mariefostino.blogspot.com

Monday, May 3, 2010

Alzheimer's Blogging: Alzheimersblogging:

More dinosaur stories: Today my husband and I took a hike at the White Tanks here in Phoenix, Az. It was around nine a.m., with the sun shining, and seventy degrees. What a beautiful day. My husband does not like to do any kind of physical activity but for me he finally agreed to do this walk. It was called waterfall trail but the river bed was dry since there hasn't been any rain in a long time. The mountains had some rocks that had some ancient writing on them. But to me the best part was a couple I met in there seventies. He was seventy five and she was seventy. They had been married for fifty three years. It was great to see them help each other as they walked around the big boulders. This is what it is suppose to be like, right? We are suppose to get old together, and still enjoy each other like when we first met. Please take care of your self. There is no study on how to stop Alzheimer's but you can still improve your health and hopefully have a full life. Eat right, exercise, drink plenty of water, and get your sleep. Try to stay away from smoking, drinking and drugs. And please enjoy the gift that God has given to you.

Sincerely,
Marie Fostino
Alzheimer's A Caretakers Journal
Seaboard Press An Imprint Of James A Rock Pub., Co.
www.mariefostino.com
www.mariefostino.blogspot.com

Saturday, May 1, 2010

ALZHEIMER'S BLOGGING: ALZHEIMERSBLOGGING:

I got called to a nursing faculty to get a 76 yr old female who is very confused, agitated, hostility and hallucinations. The report I received from the nurse is that she has been at the nursing home for a month and has been confused the whole time. But today she has been very agitated, and she thinks they are out to get her. She actually called the police telling them that they were killing people and hiding the bodies. First thing I wanted to do is see what kinds of medications she was on.

She is on xanax which is described for anxiety and panic disorders which is caused by depression. Please pay attention to what the doctor is putting your loved one on. Look it up and read about any medication they are on. This one states to let the doctor know if you have asthma, bronchitis or copd. Glaucoma. Kidney or liver disease. History of depression or suicidal thoughts. Than read the side effects: Unusual risk taking behavior. Depressed mood. Agitation, hostility, hallucinations. Fainting, seizures, muscle twitching.

This little lady was getting this medication four times a day, with a history of asthma and copd. Although she was very nice to me, she was agitated, scared for her life, and seeing things.

Please pay attention to what medication they are on and keep a journal on how they behave before and after taking the medication. Also very important see how many of these anxiety drugs they are on. This little lady was on three different kinds. How will they react with each other. You can be saving a life and a huge hospital bill.

Sincerely,
Marie Fostino
Alzheimer's A Caretakers Journal
Seaboard Press An Imprint Of James A Rock Pub., Co.
www.mariefostino.com
www.mariefostino.blogspot.com