Thursday, December 31, 2009
This has been an eventful day. As I was working today, I got the pleasure of going to an airport to pick up a 87 yr old male with history of dementia along with pneumonia, chronic low b/p going to a nursing / rehab home. I was glad that I got to pick him up because I notice that a lot of people don't know how to talk or act with a person with this terrible disease. You know the saying, this is your space and this is mine, but I know how to have compassion and go into their space with a hug or a kiss on the cheek to make them feel at home. It was so good to see his daughter get off the plane with him. But my heart really jumped for joy when I saw his wife and son waiting at the nursing home for him. I hope that rehab happens fast and he can go home soon. Nothing against nursing homes, but I find that people seem to lose all hope when they find them selves there. People need a purpose in life to go on.
It is New Years Eve, and the moon is so big and beautiful. I am lucky enough that I don't have to work until midnight tonight, and am looking forward to spending the evening with my kids and husband.
A good point tonight is to try to help your loved one with Alzheimer's to find a purpose to live. It could be as simple as washing the dishes or folding the towels. I use to keep a sink full of plastic dishes in soapy water for my father in law to wash when ever he felt like it. I also kept a basket of towels ready for him to fold at any given time. Be creative, and remember, be an angel and practice random acts of kindness. Let me know if I am helping you at all.
Sincerely,
Marie Fostino
Alzheimer's A Caretakers Journal
Seaboard Press An Imprint of James A Rock & Pub.
www.mariefostino.com
Wednesday, December 30, 2009
I don't know if anything I write is being read by anyone. But if it is, I hope I am helping you out. It is hard to believe that it will be New Years Eve in just a few hours. I am working on the ambulance tomorrow, but in the late evening I will be getting off of work and will get to spend watching the New Year come in with my husband and a couple of my kids and grandchildren. Now it is time to make New Year Resolutions. It is time to organize and list our objects of desire. Maybe it will be a new job, or maybe a new addition to the family.
I like to go through my pictures, and remember the fun times I had with my father-in-law. The times he would come over and bring pizza and play board games with us until we turned on the TV just before midnight, and count in the New Year.
I just want to share again the three things I think are most important if you are a care giver.
1) Find a good support group. Where ever you live, just check out Alzheimer's Association, and find the map, which you click on and than find your city and they will have a list of support groups.
2) Respite Care is very important. If you don't take care of yourself, you can't take care of your loved one. There is all kinds of Respite care. They have adult day cares that you can drop them off for a few hours of the day. There is Nursing homes that will take Respite care for weekends or how ever long you may need the break. You may even find someone to come to your home and give you a break.
3) Hospice Care is very important as your loved one reaches the end of life. They can give you the moral support you need, and give you what you may need to help keep your loved one in a comfort state during their last hours.
Please let me know if I have helped you at all, or if I can do anything to help.
Sincerely,
Marie Fostino
Alzheimer's A Caretakers Journal
Seaboard Press An Imprint of James A Rock Pub., Co.
www.mariefostino.com
Saturday, December 19, 2009
My father in law died June 13, 2004. I have so many wonderful memories of dad at Christmas time. I remember when I first married into the family, and Jimmy's family was Catholic and mine was Baptist. So we would go to my Christmas Eve service and than go to Jimmy's family to have fish and noodles for our meal. As we started to have a family, my in-laws would always have Santa Clause come over on Christmas Eve to give a gift to their grandchildren. Than this terrible disease came and took over my father in laws mind. Let me share with you an entry from my journal:
December 28, 2002
Picture this, in a bedroom with an adjoining bath; music blasting, loud talking and five women in their underwear, ironing clothes, fixing each other's hair, gossiping, joking, laughing, putting on makeup and not letting any men in the room.
I suddenly realized how much I missed my family--the mess, the noise, the yelling, the hugging, the helping. What a way to start Christmas Eve.
Before I moved here in August, all my kids lived with me except my oldest daughter Kristina. Then my second daughter, Jennifer, and her daughter Adias, moved to Oklahoma. My son, Erik, stayed in Decatur to be with his girlfriend. My forth child, Jessica, moved to Virgina for college and my daughter, Regina ( still in high school), moved with us. So the "empty nest" feeling was hard upon me. Having them all home for Christmas made me miss them even more and realize how precious they all are.
This was the slowest and most wonderful week of the year 2002.
We spent Christmas Day at home alone, if you call then people in a house "alone." We went to the movies and saw Lord of the Rings, The Two Towers. The next day we went to the Museum of Science and Industry in Chicago. Of course Dad was with us and we all had a great time. I bathed him on the night before so he didn't have to take a bath that morning. It was hustle and bustle in the house with so many people and only two bathrooms.
I told Dad we were going for a ride and he was good with that. He went willingly into the car and seemed happy. At the museum we had a little wait before we were able to rent a wheelchair; Dad had became impatient due to all the noise and crowds. But the kids were having a great time and once we got started, they took turns pushing his wheelchair. Each one would take time to talk to Dad, pointing things out for him or just saying, "I love you." He smiled each time they offered a little extra attention.
The museum had an area lined with Christmas trees from all over the world. We walked down the aisle and Dad kept telling us to , "Hurry now." But when we got to the section with the old-fashioned cars and fire engines, he seemed to calm down and enjoy himself. Before we left, we stopped at the old ice cream parlor for a treat. There was a long line, and Dad lost patience while we waited, but brightened up once he got his ice cream.
On the 27th of December we had an Open House. I thought this might be a good opportunity for Dad to see his family and some of his old friends. I'd discovered that many people were uncomfortable around Dad now, and they found many reasons not to stop by. I decided that an Open House, with Dad surrounded by his family, would make their visit a little less uncomfortable. These people all remembered Dad before he was sick and didn't want to see him in his current state. In any case, we all had a wonderful time. Dad even danced for everyone.
The next day the kids began to leave but that evening we went to a family reunion on my mother-in-law's side of the family. We had a great time.
My children are certainly getting an education on Alzheimer's. They have seen their Grandfather show the ugly side when he gets upset and acts like a child, fighting, kicking and swearing. But they also can see his nice side, when Dad tells them he loves them or asks them how they are doing. They are learning to be caregivers, not letting him get up with out his walker or fetching him drinks when he asks. They have learned to be patient when he asked the same thing over and over again.
They can't believe how he doesn't sleep at night, as they hear me get up repeatedly and put him back to bed. They also had time to enjoy him. We did karaoke and, while Dad didn't sing, he did get up and dance. They made him a part of the family, just as if he always was like this from the beginning.
Remember, life is a gift fro God, so please obey His will and enjoy His gift. Live each five minutes like it is your last.
Sincerely,
Marie Fostino
Alzheimer's A Caretakers Journal
Seaboard Press An Imprint of James A. Rock Pub., Co.
http://www.mariefostino.com/
Friday, December 11, 2009
This is such a wonderful time of year. I know it is hard to enjoy this time when you are juggling work, a loved one with Alzheimer's, and home life. Take a little advice. First take a deep breath and try to relax. When you are with your loved one with Alzheimer's don't make it a loud experience. Keep the music low, and pace your self. Try to remember what your loved one use to do to make the holiday special. Don't be upset if they don't remember who you are, or what Christmas is. Just be there for them, and show them the love and compassion they once showed you. Remember that they did not ask for this disease, and don't even know that they have it now.
Enjoy the time with them, and than don't feel bad that you are able to enjoy it differently with your family. Keep it special for your children, and grandchildren. Explain to them how much fun the holidays were when your parent didn't have the disease and maybe even keep up the old traditions. Life is what you make it.
This is when we celebrate the birth of our Lord. I am so happy for this opportunity, and for the freedom to do this. Merry Christmas!
Sincerely,
Marie Fostino
Alzheimer's A Caretakers Journal
www.mariefostino.com
Tuesday, December 1, 2009
Sincerely,
Marie Fostino
Alzheimer's A Caretakers Journal
Seaboard Press An Imprint of James A Rock Pub., Co.
www.mariefostino.com
Wednesday, November 25, 2009
I know that holidays are tough when you are dealing with a loved one with Alzheimer's. If you have to go to the nursing home to see them, and you are busy or out of town tomorrow try and do it today or on Friday. Remember the fun times you had with them before this terrible disease took over. If you are having your family at the house and your loved one with Alzheimer's lives there, have patience with them. They may feel lost with all the commotion, or just be quiet and watch and then the next day have out bursts. Remember that you have taken them off their schedule, and there is a lot more noise in the house than they are use to. Remember that you are an angel with acts of kindness, and giving back what you were once given. If you ever have questions please don't hesitate to ask.
Remember the 3 important things that you need to do if you are taking care of a loved one with Alzheimer's. Find a Support Group. Get Respite care. Don't forget Hospice.
Have a great holiday and may God Bless You!
Sincerely,
Marie Fostino
Alzheimer's A Caretakers Journal
www.mariefostino.com
Seaboard Press An Imprint of James A Rock Pub., & Co.
Sunday, November 15, 2009
I WANT TO THANK EVERYONE WHO HELPED WITH THE ALZHEIMER'S WALK. IT WAS GREAT TO SEE EVERYONE WALKING AND DONATING FOR SUCH A GREAT CAUSE. I WAS DISAPPOINTED THAT THERE WAS NOTHING IN THE PAPER ABOUT IT. BUT AS WE ALL KNOW, UNLESS YOU ARE DEALT WITH THE CARDS TO BE A PART OF THIS TERRIBLE DISEASE, WHETHER IT IS BECAUSE OF A LOVED ONE WHO HAS IT, OR YOU WHO HAVE IT, IT IS HUSH HUSH. I WANT TO THANK PMT AMBULANCE FOR LETTING MY AMBULANCE BE THERE TO HELP SUPPORT THE CAUSE. MY PARTNER NURSED SCRAPPED KNEES OF LITTLE ONES WHO FELL WHILE I WALKED WITH SO MANY OTHERS. IT WAS GREAT TO SEE THE T-SHIRTS OF LOVED ONES WHO HAVE DIED WITH THE DISEASE WALKING AROUND.
THANKSGIVING IS COMING UP. I HOPE YOU HAVE A GREAT HOLIDAY. I HAVE SO MANY FOND MEMORIES OF MY FATHER IN LAW CARVING THE TURKEY WHEN WE WERE YOUNG. ALWAYS HANG ON TO THOSE WONDERFUL MEMORIES.
SINCERELY,
MARIE FOSTINO
ALZHEIMER'S A CARETAKERS JOURNAL
SEABOARD PRESS AN IMPRINT OF JAMES A ROCK & PUB., CO.
www.mariefostino.com
Tuesday, November 10, 2009
CHECK OUT THE LINK ABOVE. WE WERE ON GOOD MORNING AZ TV. TALKED ABOUT OUR ALZHEIMER'S BOOK, AND THE MEMORY WALK.
THANKS FOR YOUR SUPPORT.
SINCERELY,
MARIE FOSTINO
Alzheimer's A Caretakers Journal
Seaboard Press An Imprint of James A Rock Pub., Co.
www.mariefostino.com
Monday, November 9, 2009
Just a reminder that the Alzheimer's Association Memory Walk is this Saturday here in sunny Phoenix, Az. I hope you all will join us to help get a cure for this terrible disease. I also want to thank every one who donated under my name. I received the $750.00 that I was trying to raise. THANK YOU VERY MUCH!
Tomorrow morning at 8:10 my husband Jimmy and I will be on Good Morning Az talking about the Memory Walk and my book. Look for us, and thank you for all your support.
If any of you want to still donate and/or walk, it is $30.00 for a shirt. Come on and join us. Until than have a good day, and remember that MOMENTS are important when it comes to your loved one with Alzheimer's.
Sincerely,
Marie Fostino
Alzheimer's A Caretakers Journal
Seaboard Press An Imprint of James A Rock Pub., Co.
www.mariefostino.com
Friday, November 6, 2009
Check out my article at EzineArticles.com. A week from this Saturday is the Alzheimer's Association Memory Walk. Come on out and help us find a cure for this life threatening disease.
Sincerely,
Marie Fostino
Alzheimer's A Caretakers Journal
Seaboard Press an Imprint of James A Rock Pub., Co.
www.mariefostino.com
Monday, November 2, 2009
Sincerely,
Marie Fostino
Alzheimer's A Caretakers Journal
www.mariefostino.com
Seaboard Press An Imprint of James A Rock & Co., Pub.
Saturday, October 24, 2009
Thank you,
Marie Fostino
Alzheimer's A Caretakers Journal
Seaboard Press An Imprint of James A Rock & Co., Pub.
www.mariefostino.com
Sunday, October 18, 2009
Just a reminder that Alzheimer's Association is on the move all over the country and having their Memory Walks. Here in sunny Arizona, we have one in Sun City West on October 24 at the Beardsley Recreation Center. Than on November 14 in Phoenix at the Wesley Bolin Plaza. Let's all try and help put an end to this terrible disease. I do have a team and I would love anyone who wants to walk with me to join my team. I also am collecting donations. Hit this link
http://memorywalk2009.kintera.org/faf/r.asp?t=4&i=294345&u=294345-268736349&e=2663971186
I want to thank Changing Hands Book Store for letting me put up a table to collect donations for this event. Also I want to thank Alzheimer's Association for putting up a site for my event at Changing Hands Book Store. Also Alzheimer's Association has a Helpline - 24 hrs confidential information, support and referral: 1-800-272-3900. They also have Educational Programs, Family Care Consultations, and Support Groups.
Sincerely,
Marie Fostino
Alzheimer's A Caretakers Journal
Seaboard Press An Imprint Of James A Rock & Co., Pub.
www.mariefostino.com
Sunday, October 4, 2009
TODAY THE FRONT HAS A CUTE PICTURE OF TWO ELDERLY PEOPLE WITH THE SAYING: Young love is about wanting to be happy. Old love is about is about wanting someone else to be happy. THERE TOPIC ON CARE GIVERS IS: Day centers assist caregivers.
THERE TOPIC ON WEEKLY PREVENTION UPDATE IS: Football study a game changer. THERE WEEKLY RESEARCH BULLETIN UPDATE IS: Experimental gene transfer therapy for Alzheimer's. AND FINALLY ASK NURSE DINA: Mom likes sleeping ALOT. Is that usual? CHECK OUT ALZHEIMER'S WEEKLY FOR ALL THEIR USEFUL INFORMATION. THEY HAVE SUPPORT GROUPS, PLUS SUPPORT GROUPS FOR SPOUSES AND SUPPORT GROUPS FOR PARENTS. THEY HAVE DISCUSSION BOARDS. YOU CAN LEARN ABOUT ALZHEIMER'S AND DEMENTIA. DID YOU KNOW THAT THERE IS TEN TYPES OF DEMENTIA? THEY HAVE LINKS TO CARE GIVING, CHARITIES, FINANCIAL ASSISTANCE, AND LEGAL SERVICES. THEY CAN EXPLAIN TO YOU ABOUT THE DRUGS FOR ALZHEIMER'S AND THE SIDE EFFECTS. I CAN GO ON. YOU NEED TO GO ON THIS SITE AND SEE FOR YOUR SELF. WHAT A GOOD EDUCATION FOR ALZHEIMER'S.
SINCERELY,
MARIE FOSTINO
ALZHEIMER'S A CARETAKERS JOURNAL
SEABOARD PRESS AN IMPRINT OF JAMES A ROCK & CO., PUB.
www.mariefostino.com
Thursday, September 24, 2009
Changing Hands Bookstore
Marie Fostino, author of "Alzheimer's: A Caretakers Journal" will be selling and autographing her book at Changing Hands Bookstore on Saturday, October 17, 2009. All proceeds from the sale of this book will be donated to the Alzheimer's Association Memory Walk.Changing Hands Bookstore
6428 S McClintock Drive
Tempe, AZ
480.730.0205
Saturday, October 17, 2009
9:30 am to 5:00 pm
Visit Marie's website at www.mairefostino.com
Wednesday, September 23, 2009
HEY EVERY BODY - HELP ME - THANKS
Today an estimated 5.3 million Americans are living with Alzheimer's. In addition, 78 million baby boomers are approaching the age of greatest risk for developing this fatal disease. Now is the time to ACT to end this epidemic!
This year, to support those affected by Alzheimer's, I'm participating in the Alzheimer's Association Memory Walk® to raise funds and awareness to fight this disease.
The Alzheimer's Association is the leading voluntary health organization in Alzheimer care, support and research, and funds I raise will go directly toward supporting their efforts.
I know I can make a difference with your support! Will you consider making a donation? It's easy to give online by following the link below.
Thank you in advance for your time and generosity - together, we can help end Alzheimer's!
Follow This Link to visit my personal web page and help me in my efforts to support Alzheimer's Association Desert Southwest Chapter
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Some email systems do not support the use of links and therefore this link may not appear to work. If so, copy and paste the following into your browser:
http://memorywalk2009.kintera.org/faf/r.asp?t=4&i=294345&u=294345-268736349&e=2663971186
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Marie Fostino
Alzheimer's A Caretakers Journal
Seaboard Press An Imprint of James A Rock & Co., Pub.
Saturday, September 12, 2009
What happens when our parents dementia turns into Alzheimer's? Some of us listen to what the doctors say and put them in the hands of professionals in a care center for the elderly. Some of us take on the challenge of caring directly for our parents, just as they once took care of us. The care taker inevitably feels lost and alone,
Alzheimer's A Caretakers Journey is a story of tough love. When it was discovered that my father-in-law was not him self, and his mental health was deteriorating we took on the task to take care of him. It was hard to deal with the man he had become. We had to remember that he was now a victim of the disease--that this person was not longer himself anymore. It was a greater challenge than we could have imagined, caring for him to his dying day, but it was also rewarding.
I wanted to write and share this journal in the hope that it might help others who are taking care of, or are considering, caring for their aging parents. I wrote it in a chronological diary format to give a true picture of what it is like to watch a loved one's mental and physical demise. I want them to know that they are not alone. Don't feel that you have failed when you are aggravated, depressed, or angry. These emotions only show that you are human.
If you are a caregiver or plan to be one, do your self a favor and buy this book as a gift. If you know a caregiver who could use a helping hand give this book as a gift. If you are a professional, share copies of this book with your clients. You will be warmly touched and heavenly inspired. Buy this book on the 15 of September, and get nine free bonus gifts. http://mariefostino.com/specialoffer
Sincerely,
Marie Fostino
Alzheimer's A Caretakers Journal
Seaboard Press An Imprint of James A. Rock & Co., Pub.
http://www.mariefostino.com/
Wednesday, September 2, 2009
HEY GUYS, FOLLOW THE ABOVE LINK TO HELP ME WITH MY FIGHT AGAINST ALZHEIMER'S. I HAVE ENTERED THE ALZHEIMER'S WALK IN PHOENIX,AZ. I AM LOOKING FOR MORE PEOPLE TO WALK WITH ME AND FOR DONATIONS FROM OTHERS. THIS IS FOR MY FATHER-IN-LAW AND OTHERS WHO ARE LIKE HIM. WE NEED TO FIND A CURE FOR THIS TERRIBLE DISEASE. THANK YOU VERY MUCH!
Marie Fostino
Alzheimer's A Caretakers Journal
Seaboard Press An Imprint of James A Rock & Co., Pub.
www.mariefostino.com
Saturday, August 29, 2009
This started a new change of events. She started on her conquest of searching for answers. Thank heavens for the Internet, and all the information she was able to obtain. In her story she watched with each visit how her parents digressed. She took control of their health affairs, finances, and living arrangements. She became the parent, still trying to let them think they were in charge.
She convinced them to move closer to her, so she could take care of them better,by first moving into an apartment in Virgina. After her mom wondered off one evening she found them an Assisted Living Faculty to live in. As the Alzheimer's disease got worse, they had to be moved to a place that was better equipped in taking care of her parents.
As we read this memoir, we can feel the emotions going through Debbie as she is trying to care for her parents. Her dad who is her 'rock' had a stroke first. His health failed him and with her assurance that mom would be taken care of he went on to be with the Lord. Than 36 days later, her mom followed him. But her mom was able to look at Debbie and say I LOVE YOU, before she passed on.
There are so many different books out there with so many different stories. If you are going through this situation, and have your loved one in a nursing faculty, you may want to read this book and get some in site from Debbie.
Marie Fostino
Alzheimer's A Caretakers Journal
Seabord Press An Imprint of James A. Rock & Co., Pub.
www.mariefostino.com
Wednesday, August 19, 2009
I want to share with you a wonderful person that I have come to know. Her name is Rev. Jamie Saloff. She is a Cancer survivor, an author, hosts workshops, and organizes conferences with the intention of helping others improve their lives physically, emotionally, and spiritually. Her book is called Transformational Healing. Her website is http://www.icantransform.com/ . She also has an authors visibility website called The Polka Dot Banner. She has written a real nice review about my book. She wrote, THE THING I FELT ABOUT THE BOOK WAS THAT IT SEEMED TO OFFER A POSITIVE OUTLOOK ON SOMETHING THAT SEEMINGLY HAD NOTHING POSITIVE TO OFFER. SOME OF THE SITUATIONS WERE GUT WRENCHING, AND YET, YOU NOT ONLY CAME THROUGH THEM, BUT HAVE NOW BECAME AN INSPIRATION TO OTHERS WHO ARE GOING THROUGH IT NOW. THAT'S A VERY GOOD THING. Thank you for those kind words Jamie. She is going to put my book on her Polka Dot Banner starting Monday August 24. So if you get a chance go to her link http://www.polkadotbanner.com/ and find my book and hit it. The top hit profile each month wins a featured author position.
Sincerely,
Marie Fostino
Alzheimer's A Caretakers Journal
An Imprint of James A. Rock & Co., Pub.
http://www.mariefostino.com/
Friday, August 14, 2009
This is the hardest stage for the caregiver. The loved one affected with Alzheimer's is likely to experience increased loss of mobility, lack of coordination, decreased appetite, and will need help in bathing, dressing and using the bathroom. It is real sad to see your loved one this way, but you will have to have patience as you help them with their daily activities. They will not know you at all, and that is very heart breaking. You need to focus on what abilities they still can do and watch how you talk and respond to them. Just like a child, when you are crabby they will be also They are dying and even though you may be upset with the idea of their death, you need to keep a positive outlook so that you demeanor doesn't show them you are upset. You need to touch them with affectionate ways, and continue to tell them that you love them. You will be giving them comfort and they really need it.
Sincerely,
Marie Fostino
Alzheimer's A Caretakers Journal
An Imprint of James A Rock & Co., Pub.
www.mariefostino.com
Tuesday, August 4, 2009
Check out my little movie on Joe and his progressing Alzheimer's
http://www.youtube.com/watch?v=1-dWlsgM9LA&layer_token=3c1917039222373
How do you know if you are becoming overly stressed or near burnout? It is important to take care of yourself. Sleep, relaxation, diet, exercise, and meditation are some important ways to take care of yourself so that you can take care of your loved one with Alzheimer's Disease. Here are some common warning signes of caregivers stress.
* Denial about your loved one with Alzheimer's Disease. You may think they are getting better.
* Frequent anger and irritability.
* Sleep problems, exhaustion, insomnia or constant fatigue.
* Difficulty concentrating.
* Social withdrawal, anxiety or depression.
* Constant worry.
* No motivation to get out of bed.
* Chronic health problems
If you are experiencing any of these signs on a regular basis you need to get some help. If you don't try to decrease your stress level, it is time for you to stop being the caregiver.
Sincerely,
Marie Fostino
Alzheimer's A Caretakers Journal
Seaboard Press An Imprint of James A. Rock & Co., Pub.
www.mariefostino.com
Tuesday, July 21, 2009
I hope that my book helps you see how this disease affects our family and gives you an idea what to expect. Also I hope this book will help you make the right decision to whether you will be the care giver or someone else.
Sincerely,
Marie Fostino
Alzheimer's A Caregivers Journal
Seaboard Press An Imprint of James A Rock & Co., Pub
www.mariefostino.com
Thursday, July 9, 2009
Stage 1:
gradual short-term memory loss
losing and hiding things
wandering
experiences emotional changes
displays odd and inappropriate behavior
tends to be suspicious and /or accusing
Stage 2:
severe memory loss
difficulty speaking
difficulty communicating
restlessness
easily agitated
bad hygiene practices
tendency to wander and/or get lost
"sun-downing"
sleep disturbances
behaving childishly
hallucinating
resents caregivers
displays anger
clinging behavior
Stage 3:
severe speech impairment
displays very little awareness of surroundings
extreme loss of mental functions
refuses to eat
displays complete dependency
incontinence
inability to preform most activities
If your loved one is showing these signs, please get them tested and put on the right medicine to try and slow this disease before it takes their mind completely away. But remember that Alzheimer's unfortunately will take their mind away. So just show them that you love them.
Sincerely,
Marie Fostino
Alzheimer's A Caretakers Journal
Seaboard Press An Imprint of James A. Rock & Co., Pubs.
www.mariefostino.com
Sunday, June 28, 2009
Are you ready to Let Go?
You have had to let go of your loved one with Alzheimer's in many ways with this disease. The way they use to act and talk. The idea that they don't know who you are any more. Some of you even had to let go of your role as a caregiver. You may have put her/him in nursing home or you turned over your care to a professional caregiver in your home. But even though you had to let go of many aspects of your loved one gradually through the years, don't expect to be able to completely let go of your loved one when they die.
Letting go of the role of caregiver will be harder than you think. For many people, the role of a caregiver is primary source of self-validation. When your loved one dies, you may feel lost, worthless, useless without the responsibility of taking care of them. Be careful that these feelings don't turn you into depression or despair. You are worthwhile, and must deal with your feelings and go on to find new ways to fill your life with meaning.
Sincerely,
Marie Fostino
Alzheimer's A Caretakers Journal
Seaboard Press An Imprint Of James A Rock & Co., Pub.
www.mariefostino.com
Friday, June 19, 2009
The symptoms of Alzheimers:
Memory Loss - Trouble Performing Familiar Tasks - Poor judgement - Misplacing Things - Disorientation
The symptoms of the Caregivers:
Guilt - Loneliness - Overwhelmed - Sadness - Joy
As a caretaker I found out that "Moments" are the most important thing for the caretaker. I treasured the good moments we had instead of focusing on the bad moments. I hope that you found my book helpful.
Sincerely,
Marie Fostino
Alzheimer's A Caretakers Journal
Seaboard Press An Imprint of James A Rock & Co., Pub.
www.mariefostino.com
Sunday, June 14, 2009
One of the symptoms of Alzheimer's disease that most people don't want to discuss is bowel and bladder accidents. This occurs in the later stage of the disease. At stage 2 they may develop urinary incontinence, but in stage 3 most patients will have trouble controlling bodily functions. This person may not remember what the sensation means or is unaware of the need to relieve them self. If they do have the sensation they may have memory problems making it difficult to find the bathroom. There are many possible causes of incontinence in older people besides Alzheimer's. 1) frequent drinking of diuretic like coffee, tea, cocoa, beer, or colas. 2) side effects of medications. 3) infections, such as urinary tract infections. 4) prostate problems. 5) weak pelvic muscles. 6) anxiety or fear.
Once a person has more than an occasional accident you will have to begin to deal with incontinence as a regular part of life. Try to learn to recognize the nonverbal clues that your loved one is giving. Maybe schedule frequent bathroom visits. Put signs or pictures to show where the bathroom is. Make sure their clothes are easy to get on and off. Decrease the amount of fluids at night. And use an adult absorbency pad. They have some that look like underpants, and your Alzheimer person may not even know the difference.
I hope you enjoy my video:
http://www.youtube.com/watch?v=1-dWlsgM9LA&layer_token=3c1917039222373
I hope this helps.
Sincerely,
Marie Fostino
Alzheimer's A Caretakers Journal
Seaboard Press An Imprint of James A. Rock & Co., Pub
http://www.mariefostino.com/
Thursday, June 4, 2009
What happens when you are the patients life partner. When we get married we say to each other "in sickness and in health" and through life each partner usually does his or her fair share of taking care of each other. But when Alzheimer's hits, the person with Alzheimer's will need more and more and the person without will give and give. There will be an emotional and physical strain on the marriage. As for the caregiver, the person whom they had married, whom had brought them so much comfort, joy and love will be the thing of the past. You won't have the same kind of relationship but you can still enjoy doing things together. You will have to accept what is happening to your spouse and how your life is changing. Look for a good support group. And remember, to the world you are but one person, but to that one person, you may be the world.
Sincerely,
Marie Fostino
Alzheimer's A Caretakers Journal
Seaboard Press An Imprint of James A Rock & Co., Pub.
www.mariefostino.com
Thursday, May 21, 2009
Believe it or not, it is raining here in Phoenix, Az. My grand baby had fun running through the rain drops. It doesn't happen very much here so we have to enjoy the rain when we get it.
I was thinking back to taking care of dad when he was alive and some of the equipment I needed to make life easier for him. I needed a walker after his surgery, and later a wheel chair when he wasn't able to walk very far any more. I needed a chair for the bath tub so he could get in and out easily, and a toilet seat that sat on top of the toilet so he didn't have to bend down so far.
I found a good medical supply by my house in Palos Heights, Ill at that time. But as I am looking on line today, I see one that will deliver to your home and you can order on line. It is called THE MEDICAL SUPPLY GROUP. This company has been around for 15 yrs supplying medical professionals, health care clinics and insurance carriers with quality medical equipment and supplies. This company is out of Deerfield Beach, Fl and has an 800 number of 1-800-278-0227.
I hope this will help make your life easier. And if you get a chance look at my video,
http://www.youtube.com/watch?v=1-dWlsgM9LA&layer_token=3c1917039222373
Sincerely,
Marie Fostino
Alzheimer's A Caretakers Journal
Seaboard Press An Imprint Of James A Rock & Co., Pub.
http://www.mariefostino.com/
Tuesday, May 19, 2009
If you want your loved one to stay home, it may help if you can find some help. Of course you would first try to see if you have a family member that can donate some time. But if that doesn't work I have found the site for you. It is called Visiting Nurse of Associations of America. There Mission: is to promote, support, and advance VNAs in their mission to serve their community. The VNAA has established itself as the official national association for community based non profit Visiting Nurse Agencies and Home Health Care Agencies who care for and treat approximately 4 million patients a year. The VNAA offers continuatating education classes for its employees each year. Their home health care assistes disabled, chronically or terminally ill wether a medic, nursing, social, or therapeutic treatment. There site is www.vnaa.org
Thank you,
Marie Fostino
Alzheimer's A Caretakers Journal
Seaboard Press An Imprint Of James A Rock & Co., Pubs
www.mariefostino.com
Friday, May 15, 2009
I hope this finds everyone well tonight. The weather here in sunny Arizona is getting hot again. Please remember it is important to drink lots of water and stay hydrated. It is probably a good idea to keep your loved one, with Alzheimer's inside where it is cool.
I have been looking at sites to help you all out and I found one called Consumer Consortium on Assisted Living. There MISSION: Education & Advocacy organization focused on the needs, rights, and protection of assisted living consumers, professionals, and advocates for assisted living issues. There e-mail is info@ccal.org .
Please take a moment and check out my video on youtube. http://www.youtube.com/watch?v=1-dWlsgM9LA&layer_token=3c1917039222373
Please don't forget to find a great support group and respite care.
Talk to you soon.
Sincerely,
Marie Fostino
Alzheimer's A Caretakers Journal
Seaboard Press An Imprint Of James A Rock & Co. Pub.,
http://www.mariefostino.com/
Friday, May 8, 2009
I was looking through the sites on the computer again and found one called family friends. The mission of Family Friends is to enable clients to continue living a joyful and independent lifestyle in their homes. They have information to help you find a CNA or a Coompanion to help cases, whether 24hrs - 7days a week, or day - evening - or hr coverage. You can look them up at familyfriends.com or e-mail them at info@familyfriends.com. I hope this helps.
Remember you are not alone. And it does not make you look weak to ask for help. I really needed my respite care at the adult day care center for just some peace of mind and to rest. After all we are just human.
Please check out my video on youtube http://www.youtube.com/watch?v=1-dWlsgM9LA&layer_token=3c19170397222373
Have a great day!
Sincerely,
Marie Fostino
Alzheimer's A Caretakers Journal
Seaboard Press An Imprint Of James A Rock & Co., Pub.
www.mariefostino.com
Sunday, May 3, 2009
Here is a clip on youtube about my book Alzheimer's A Caretakers Journal. It starts with dad being confused. It shows him having fun dancing, which was one of his favorite things to do. It also shows him out side in the cold, wanting to die, and I am shameful to say you can hear in my voice how aggravated I was. Than it shows how his disease makes him even more confused, not understanding that he owns his own house or where he lives. Finally it shows how taking care of one this way is an every day chore like always changing the sheets off the bed. And how dad could not even put a baby puzzle together or even open a door. I just want you to know that I have been there and know how hard it is. I hope that my book is a helpful tool. And remember that it is a personal choice whether you keep your loved one at home or put them into a nursing home.
Sincerely,
Marie Fostino
Alzheimer's A Caretakers Journal
Seaboard Press An Imprint of James A. Rock & Co., Pub.
www.mariefostino.com
Saturday, May 2, 2009
I have been looking for some new sites on the computer to help anyone who is going through this rough time taking care of a loved one with Alzheimer's. Today we will talk about a site called THIRD AGE, INC. The mission of the Third Age Inc is to provide professional consulting services of the highest ethical standards and business practices to provides of long-term care, assisted living ad continuing care, to improve their client's ability to operate their communities efficiently and effectively, thereby enhancing the lives of the person they serve. They are consultants to continuing care and long term care providers all over the nation. Look for them on line. Hope this helps.
Sincerely,
Marie Fostino
Alzheimer's A Caretakers Journal
Seaboard Press An Imprint Of James A Rock & Pub., Co.
www.mariefostino.com
Saturday, April 18, 2009
It is a beautiful day here in sunny Phoenix, Az. I ran my 2 miles, and got some house work done and it is still early. Times have changed since my father in law died. It was sometimes hard to go running, or taking care of my self. My whole purpose was to try and give dad as normal life as possible. Of course there are always reasons that we don't take care of our selves. My husband is not working and so I am pulling extra shifts on the ambulance. That means less time to sleep, and exercise.
I want to tell you that it is important to take care of your self, because if you don't how do you think you can keep up with your other responsibilities. It is important to exercise every day for your body, and important to get your sleep for your mind. It is important to pray for your soul.
Care givers do so much taking care of so many other people that they forget about them selves. Remember that their is respite care to help you out. And there is support groups to help you vent or gain insights. There are so many wonderful sites on the computer to help you with more knowledge on Alzheimer's .
I met the author Stephanie Meyers yesterday, and she is so sweet. She is beautiful, and so friendly. In case you don't know Stephanie is the author of the Twilight Series. Thank you Stephanie for being so kind.
Well take care all,
Sincerely,
Marie Fostino
Alzheimer's A Caretakers Journal
Seaboard Press An Imprint of James A Rock & Pub., Co.
www.mariefostino.com
Thursday, April 2, 2009
I had the pleasure of taking care of my father in law, when he couldn't take care of him self. This great man did so much for me and my husband when I married into the family. I never knew that a time would come for me to try and give back what was given to me.
In life we have hills and valleys. We have to endure the good times and the bad. I don't think we would really appreciate the good without the bad. My good times with dad, mostly when we were young, and dad showed us about life. I am not saying that taking care of dad after he got his Alzheimer's, but it sure was bumpy.
I have learned so much about myself during that time. I also think I talked to God more at that time in my life. I had to remember that I was human, and make mistakes. But also being human, I learned to forgive and to be forgiven.
If you want to know what to expect from a loved one with Alzheimer's please read my book. I tell what it is like, the good and the bad. Please find yourself a support group. That is so important for your self worth. You need to see that you are not alone, and others have made the same mistakes you made or had the same blessings that you had. You can learn from someone else and even teach someone else from your own experience.
Thank you,
Marie Fostino
Alzheimer's A Caretakers Journal
Seaboard Press An Imprint Of James A Rock & Pub., Co.
www.mariefostino.com
Friday, March 27, 2009
I just have to share this wonderful experience I just had on my ambulance. I picked up a couple in their 80's. The wife just had both her legs amputated due to poor circulation. I was taking them to a rehab to help her with her new life now. They have been married for 60 yrs and so happy. I love how she looks at her husband with so much joy in her eyes. And even though she has just had this bad thing happen to her, she seems OK with it, and looks to her husband for support.
Well I hope that my book is helping you, and don't forget to get respite care, and join a support groups. Don't forget to pray.
Sincerely,
Marie Fostino
Alzheimer's A Caretakers Journal
Seaboard Press An Imprint James A Rock & Co., Pub.
www.mariefostino.com
Sunday, March 15, 2009
I want to share with you an experience I had on Friday. I had a patient to take care of and as I looked at him, and watched his body movements and his facial expressions I was seeing my father in law all over again. We were bringing him to an nursing home in California from Phoenix. He was scared, and very confused. Of course we had to strap him on our gurney and thank heavens we have a top harness strap, because he managed to wiggle his legs free. He was able to tell me his name but told me he was 7 yrs old. When I asked him if he knew where he was, he told me NO and told me not to tell him so he wouldn't be scared. He held on to my hands for the whole trip. At one point he did get a little aggressive, and put on that scary ugly face with hatred, and grabbed my hands trying to hurt them, and trying to get loose. But that is part of Alzheimer's and I just watched him and continued holding his hands till he settled down. I hope that I comforted him through the trip. He at one time had a Foley in, but I was told he pulled it out him self. I know that it had to hurt, but he had no idea what he was doing. He also had a feeding tube in. I wonder how many times he tried to pull that out. I was so happy that I got to be the one to take care of him. I watched his face as he moved his head back and forth, looking around in wonderment. I would whisper in his ear if he was alright, and he would smile back at me. Just remember that to the world you are just one person, but to one person you may be the world.
Sincerely,
Marie Fostino
Alzheimer's A Caretakers Journal
Seaboard Press an Imprint of James A Rock & Co., Pub.
www.mariefostino.com
Monday, March 9, 2009
If your loved one has Alzheimer's try to remember what it was that made you fall in love with him/her. And remember that they can't help how they are now. Alzheimer's has gotton to their brain, and they are not themselves. Don't forget the support groups to help you get through this tough time.
Sincerely,
Marie Fostino
Alzheimer's A Caretakers Journal
Seaboard Press An Imprint Of James A. Rock & Co., Pub.
www.mariefostino.com
Wednesday, March 4, 2009
Please remember that whether you keep your loved one at home or put in a nursing home that it is real tough either way. It is important that you go to Alzheimer Support Groups. Listen to other people and see that you are not alone. You can learn from them and they can learn from you. Check out the Alzheimer Web Sites on line. They are full of useful information. Check out Alzheimer Association, to see where they have support groups in your area.
Remember that to the world you are but only one person, but to that one person you are the world.
Sincerely,
Marie Fostino
Alzheimer's A Caretakers Journal
Seaboard Press An Imprint of James A. Rock & Co., Pub.
www.mariefostino.com
Thursday, February 26, 2009
My book on Alzheimer's is about what it is like taking care of someone at home with this terrible disease. It is to make you realize that you can not do it alone. That if you take on this job, than to remember that you have to take care of yourself. Respite care is important, so that you can have some time to yourself since it is a 24hr - 7 day a week job. Support groups are very important. You need to be able to vent to people who understand what you are going through, and maybe, just maybe someone may have a good suggestion. Hospice is also very important when you are going into the last stage of Alzheimer's. They can give you advice, support, and compassion.
I hope that you are also going on line to Alzheimer Web Sites. They are so helpful with such useful information. I love to read the saying on Alzheimer's Weekly Site. This week it says ...
AGE DOES NOT PROTECT YOU FROM LOVE. BUT LOVE TO SOME EXTENT PROTECTS YOU FROM AGE.
Sincerely,
Marie Fostino
Alzheimer's A Caretakers Journal
Seaboard Press An Imprint Of James A Rock & Co., Pub.
www.mariefostino.com
Thursday, February 19, 2009
Hope all is well with everyone. I hope you all are looking at the Alzheimer's Web Sites. This week from Alzheimer's Weekly, is a quote from Abraham Lincoln, ' And in the end, it's not the years in your life that count. It's the life in your years.' The times are hard now with the economy now. A lot of people are out of work, and having trouble making house payments. Let's keep our Country in prayer. Let's help out a stranger, a friend, and a family member. We will get through this, but it will take time. I hope my book is helping some of you out. It is rough taking care of your loved one with Alzheimer's but also rewarding. Keep thinking of what your loved one was like before this terrible disease took over their mind. And keep praying.
Sincerely,
Marie Fostino
Alzheimer's A Caretakers Journal
Seaboard Press An Imprint Of James A. Rock & Co., Pub.
www.mariefostino.com
Monday, February 9, 2009
REMEMBER THE FIVE SAMPLE RULES TO BE HAPPY:
FREE YOUR MIND FROM HATRED -- FORGIVE
FREE YOUR MIND FROM WORRIES -- MOST NEVER HAPPEN
LIVE SIMPLE & APPRECIATE WHAT YOU HAVE.
GIVE MORE
EXPECT LESS
ANONYMOUS
Marie Fostino
Alzheimer's A Caretakers Journal
Seaboard Press An Imprint of James A Rock & Co., Pub
www.mariefostino.com
Sunday, February 8, 2009
Believe it or not we have had a lot of rain here in sunny Phoenix, Az. But the weather has been beautiful. Remember to always find something great about each and every day. Each day is a GIFT from God. Well I had a really wonderful day last week. I have been sending a few of my books to some celebrities, hoping that they will read them, and maybe it will be of some comfort if they are dealing with Alzheimer's. I got a wonderful response from RICHARD SIMMONS, and so he made my WEEK. THANK YOU RICHARD FOR TAKING THE TIME TO READ MY BOOK AND RESPOND BACK TO ME!!
I do hope that you readers are taking advantage of the Alzheimer Websites for useful information. And remember that you are being an angel, doing random acts of kindness. But also remember that you do need to take some time for your self, so you can keep taking care of your loved one. This week in Alzheimer's Weekly it states : YOU CAN NOT CONTROL THE WIND. BUT YOU CAN ADJUST YOUR SAILS. Don't forget to pray. God is with you. Have a great week.
Sincerely,
Marie Fostino
Alzheimer's A Caretakers Journal
Seaboard Press An Imprint of James A. Rock & Co., Pub.
www.mariefostino.com
Tuesday, February 3, 2009
Life is such an adventure, and it is not what is handed out to you, but how you handle the situation. Right now I am dealing with a family member that was just diagnosed with Cancer. But we know that God is in control. I think that is the secret. You have to remember that God is in control. Whether it is a loved one with Cancer, or with Alzheimer's. Than you have to put it in his hands, and show your love and compassion as time goes on. I do hope that while you are taking care of your loved one with Alzheimer's you are taking care of yourself. Take advantage of Respite Care, and Support Groups. And look on line at the additional Alzheimer Web Sites for useful information. This Week on Alzheimer's Weekly Website it states: THERE IS IN EVERY TRUE PERSON'S HEART A SPARK OF HEAVENLY FIRE. WHICH KINDLES UP, BEAMS AND BLAZES, IN THE DARK HOUR OF ADVERSITY.
Sincerely,
Marie Fostino
Alzheimer's A Caretakers Journal
Seaboard Press An Imprint Of James A. Rock & Co., Pub.
www.mariefostino.com
Sunday, January 25, 2009
Sincerely,
Marie Fostino
Alzheimer's A Caretakers Journal
Seaboard Press An Imprint Of James A. Rock & Co., Pub.
www.mariefostino.com
Thursday, January 22, 2009
I hope that I am helping any one who is reading this. Alzheimer's is a terrible disease, and misunderstood by many. I understand how lonely you feel, when no one wants to come around anymore. I understand the frustration you feel, when you lose your temper, or get angry. I understand how sorry you feel, because you are human, and we all make mistakes. I hope that my book can help you, and let you see the changes that come around as the Alzheimer's Disease gets worse. I hope you can see how important it is to get respite care, and that if you don't take care of your self, you can not take care of your loved one. I want to make it important that you take the MOMENTS you get with your loved one, the ones that make you smile, and keep them inside your heart, and when Sundowners comes around, and they are hard to get along with, you can pull out that wonderful moment you had earlier, and dwell on that instead. Alzheimer's Weekly has a wonderful saying this week. MOST OF US HAVE MUCH MORE COURAGE THAN WE EVER DREAMED WE POSSESSED. Remember to pray, and look for a good thing each and every day.
Sincerely,
Marie Fostino
Alzheimer's A Caretakers Journal
Seaboard Press An Imprint of James A. Rock & Co., Pub.
www.mariefostino.com
Sunday, January 18, 2009
Hello,
Sorry I have not been on here lately. First came Christmas and I had 4 of my kids and my 5 grandkids here on Christmas Day, and the weekend after my son came down, so all my kids with their mates and kids were here. It was noisey, and messy, and loud, and FUN! I hated to see the kids leave, and the holiday to end.
Well now this year is a new adventure for us. We just found out that my son has cancer. CANCER is a scary word to me. It is strange I know, but I am not real worried because I know God is in charge. We were not made to last here on earth for ever. In this life we are to prepare for eternity. We are to practice here on earth what we are suppose to do in eternity. We have to remember that the reason God is more interested in your character than your comfort. God is more interested in making your life Holy than your life Happy. The goal is to grow in Character of Christ likeness.
So please keep us in your thoughts and prayers. And remember that no matter how bad things are in your life, there is always something good you can thank God for.
Love,
Marie Fostino
Alzheimer's A Caretakers Journal
Seaboard Press An Imprint Of James A Rock @ Co., Pub.
http://www.mariefostino.com/